Community Engagement for Analysis of Data Generated by the Gabriella Miller Kids First Pediatric Research Program
The National Institutes of Health’s (NIH) Gabriella Miller Kids First Pediatric Research Program’s (“Kids First”) vision is to alleviate suffering from childhood cancer and structural birth defects by fostering collaborative research to uncover the etiology of these diseases and supporting data sharing within the pediatric research community. The program continues to generate and share whole genome sequence datasets from cohorts of children affected with these conditions (https://commonfund.nih.gov/kidsfirst/x01projects). Researchers can access, aggregate, analyze, and share these data as well as associated clinical and phenotypic data through the Gabriella Miller Kids First Data Resource, which includes the public-facing, web-based portal, the Kids First Data Resource Portal, and cloud-based workspaces.
NIH has a strong interest in encouraging the use of this dataset to accelerate genetic discovery and ultimately inform clinical practice and improve health outcomes. However, many excellent grant applications that involve utilizing Kids First data go unfunded. Additional avenues of funding through collaborations with non-governmental organizations can amplify the value of these data and improve pediatric preventative measures, diagnostics, and therapeutic interventions.
To this end, the organizations listed below have agreed to be contacted by researchers who have applied for NIH grants (such as the Kids First R03) to analyze Kids First datasets, and whose applications were reviewed through the rigorous NIH peer review system, but who ultimately were not funded.
If you represent an organization that would like to provide a second chance to Kids First applicants or you are an applicant with questions about the Kids First Second Chance, contact KidsFirst@od.nih.gov.
Organization Name: CDH International
Organization website: http://www.cdhi.org
Contact: Dawn Ireland, President
Contact Person’s Email: firstname.lastname@example.org
Organization's Proposal Interest: CDH International is the world's largest, oldest and most active organization for Congenital Diaphragmatic Hernia and is willing to be the liaison between researchers, funding and the CDH community. We will accept applications of any kind for Congenital Diaphragmatic Hernia research in any discipline. Researchers are encouraged to submit grant proposals to the listed e-mail address provided.