Community Engagement Workshop (2024) Agenda

Welcome and Introduction

Douglas Sheeley, Sc.D.
Acting Director
Office of Strategic Coordination
Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI)
Office of the Director, NIH

Keynote

Krystal Tsosie, Ph.D., M.P.H., M.A.
Assistant Professor in the School of Life Sciences at Arizona State University
Associate Director of the Biodiversity Knowledge Integration Center at ASU

NIH Common Fund/CFDE Resources

George Papanicolaou, Ph.D.
Common Fund Data Ecosystem (CFDE) Program Leader
Office of Strategic Coordination
Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI)
Office of the Director, NIH

Break

Panel Discussion on How Data Policy (Privacy and Ethics) Impacts Historically Underserved Communities

Panelists:

• Mitchell Lunn, M.D., M.A.S., FACP, FASN
  Associate Professor of Medicine (Nephrology) and of Epidemiology and Population Health at Stanford University School of Medicine
• Nyasha Chambwe, Ph.D.
  Assistant Professor, Institute of Molecular Medicine, Feinstein Institutes for Medical Research
• Krystal Tsosie, Ph.D., M.P.H., M.A.
  Assistant Professor in the School of Life Sciences at Arizona State University
  Associate Director of the Biodiversity Knowledge Integration Center at ASU

Moderator:

Rachel Britt, Ph.D.
Strategic Planning, Evaluation, and Communications Team Leader
Office of Strategic Coordination, The Common Fund
Division of Program Coordination, Planning, and Strategic Initiatives
Office of the Director, NIH

Lunch

Workshop Breakout Session on Community Engagement Strategies

These will be interactive sessions where attendees will have the opportunity to break out into small groups to address a series of questions. Virtual attendees will be able to participate in the discussion in virtual break out rooms.

Moderators:

• Desiree Shantai Smith, M.P.H., Dr.Ph.
  Health Equity Research and Evaluation
• Karriem Watson, DHSc., M.S., M.P.H.
  Chief Engagement Officer, NIH All of Us Research Program
• Erin Beck, M.S.
  Biomedical Informatics Project Manager
  National Cancer Institute (NCI), NIH

Panel Discussion on Data Use and Accessibility

Panelists:

• Frank Elavsky
  Research Assistant, Human Computer Interaction Institute, Carnegie Mellon University
• Seth Berke
  Research Assistant position at the Johns Hopkins Bloomberg School of Public Health
• Katherine Kim, Ph.D., M.P.H., M.B.A., FAMIA
  Adjunct Full Professor at University of California Davis, School of Medicine, Department of Public Health Sciences
  Senior Scientist for Health at CITRIS (Center for Information Technology Research in the Interest of Society) at UC Berkeley

Moderator:

Maryam Zaringhalam, Ph.D.
Data Science and Open Science Officer in the National Library of Medicine’s Office of Strategic Initiatives, NIH

Break

Workshop Breakout Session on Data Challenges and Barriers to Data Use

These will be interactive sessions where attendees will have the opportunity to break out into small groups to address a series of questions. Virtual attendees will be able to participate in the discussion in virtual break out rooms.

Moderators:

• Lauren Amos, Ph.D.
  Deputy Area Director for State and Local Human Services, Mathematica
• Samson Gebreab, Ph.D., M.Sc.
  Program Lead, AIM-AHEAD
  Office of Data Science Strategy (ODSS)
  Office of the Director, NIH
• Avi Ma’ayan, Ph.D.
  Mount Sinai Endowed Professor in Bioinformatics
  Professor, Department of Pharmacological Sciences
  Director, Mount Sinai Center for Bioinformatics

Closing Remarks

Adjourn Day 1

Panel Discussion on Training & Education Needs of the Data Community

Panelists:

• Jenea Adams, M.S.
  Penn Presidential Ph.D. Fellow and Ph.D. candidate in Genomics and Computational Biology
  Founder and Executive Director of the Black Women in Computational Biology Network (BWCB)
• Kevin Cassel, Dr.PH., M.P.H.
  Associate Director, Community Outreach and Engagement Office
  Associate Professor Population Sciences in the Pacific Program
  University of Hawaii Cancer Center
• Zaki Sherif, Ph.D.
  Tenured Full Professor at Howard University College of Medicine and an Adjunct Professor at Georgetown University School of Medicine

Moderator:

Nandita Rahman
Director of Data Governance, Office of Data and Analytics, All of Us Research Program

Two Concurrent Breakout Sessions

These will be interactive sessions where attendees will have the opportunity to break out into small groups to address a series of questions. Virtual attendees will be able to participate in the discussion in virtual break out rooms.

a. Workshop Breakout on Data Solutions to identified barriers from Day 1

Moderators:

• Lauren Amos, Ph.D.
  Deputy Area Director for State and Local Human Services, Mathematica
• Samson Gebreab, Ph.D., M.Sc.
  Program Lead, AIM-AHEAD
  Office of Data Science Strategy (ODSS)
  Office of the Director, NIH
• Avi Ma’ayan, Ph.D.
  Mount Sinai Endowed Professor in Bioinformatics
  Professor, Department of Pharmacological Sciences
  Director, Mount Sinai Center for Bioinformatics

b. Workshop Breakout to discuss the immediate Training Needs and Supports of the Community

Moderators:

• Rachel Britt, Ph.D.
  Strategic Planning, Evaluation, and Communications Team Leader
  Office of Strategic Coordination, The Common Fund
  Division of Program Coordination, Planning, and Strategic Initiatives
  Office of the Director, NIH
• MacKenzie Brandes, M.B.A.
  Project Manager I, Metabolism Program, Diabetes
  Broad Institute
• Noël Burtt
  Director, Operations & Development, Diabetes Research & Knowledge Portals
  Program in Medical and Population Genetics
  Broad Institute of Harvard and MIT

Break

Workshop Closing Presentation & Wrap Up

Chris Kinsinger, Ph.D.
Assistant Director for Catalytic Data Resources
Office of Strategic Coordination
Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI)
Office of the Director, NIH

Adjourn Day 2