Kids First Program’s First Annual Meeting

On September 6th, 8:30AM – 5:00PM EDT, the NIH Common Fund will hold a webinar for Kids First Program’s First Annual Meeting to discuss the current progress of the Kids First program and plans for development of the Kids First Data Resource Center. 

We invite you to participate in this webinar, and ask that you please register in advance. After registering, you will receive a confirmation email with instructions on how to view the webinar. If the embedded hyperlink is not working for you, the full link and meeting number are provided below. There will be an opportunity to ask questions during the webinar, and you can also submit questions prior to the webinar at KidsFirst@od.nih.gov.

The link to register for the webinar is: https://nih.webex.com/nih/j.php?RGID=r8d4f661586e9eb1a8c3c0666005b7c49
Meeting Number: 626 119 868
For assistance please contact Danyelle Winchester at: danyelle.winchester2@nih.gov 


Gabriella Miller Kids First Pediatric Research Program will establish a New Pediatric Data Resource Center


The Kids First Program is establishing a Pediatric Data Resource Center in collaboration with The Center for Data Driven Discovery in Biomedicine at Children's Hospital of Philadelphia (CHOP) to allow researchers everywhere access to vast amounts of childhood cancer and structural birth defects genetics data. Read more https://d3b.center/kidsfirst/


Third Set of Childhood Cancer and Structural Birth Defect Patient Cohorts Announced

Kids First is pleased to announce the selection of a third set of childhood cancer and structural birth defects patient cohorts for whole genome sequencing. These patient cohorts will contribute to the forthcoming Kids First Data Resource which will allow scientists to identify genetic pathways that underlie these conditions and to explore whether shared genetic pathways exist between childhood cancer and structural birth defects. The applications were reviewed by a panel of external scientific experts and the selected cohorts address the following conditions:

The Kids First program will to call for applications to support whole genome sequencing of additional childhood cancer and structural birth defect cohorts in fiscal year 2018, pending availability of funds.


Second Set of Childhood Cancer and Structural Birth Defect Patient Cohorts Announced

Kids First is excited to announce the selection of a second set of childhood cancer and structural birth defects patient cohorts for whole genome sequencing. These patient cohorts will contribute to the forthcoming Kids First Data Resource which will allow scientists to identify genetic pathways that underlie these conditions and to explore whether shared genetic pathways exist between childhood cancer and structural birth defects. The applications were reviewed by a panel of external scientific experts and the selected cohorts address the following conditions:

  • Cancers of the nerves that help control involuntary function (Neuroblastoma)
  • Cancers of the bone marrow that makes blood cells (Acute lymphoblastic leukemia and Hodgkin and non-Hodgkin lymphoma)
  • Diverse collection of Central Nervous System (CNS) and non-CNS solid tumors
  • Congenital Heart Defects
  • Developmental disorders of the chest muscle used for breathing (Congenital Diaphragmatic Hernia)
  • Cleft lip and cleft palate (Orofacial Cleft Birth Defects)
  • Congenital hearing loss
  • Abnormal curvature of the spine (adolescent idiopathic scoliosis)

Learn more about the 2015 and 2016 cohorts. The Kids First program plans to call for applications to support whole genome sequencing of additional childhood cancer and structural birth defect cohorts in fiscal years 2017-2018, pending availability of funds.


This page last reviewed on August 29, 2017