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Program Snapshot

The Common Fund’s Patient-Reported Outcomes Measurement Information System (PROMIS) program is creating new paradigms for how clinical research information is collected, used, and reported. PROMIS addresses a need in the clinical research community for a rigorously tested patient reported outcome (PRO) measurement tool that utilizes recent advances in information technology, psychometrics, and qualitative, cognitive, and health survey research to measure PROs such as pain, fatigue, physical functioning, emotional distress, and social role participation that have a major impact on quality-of-life across a variety of chronic diseases.

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Program Highlights

Using PROMIS measures to evaluate patients’ recall of sexual function and activity reveals mood as a critical biasing factor

Using PROMIS measures to evaluate patients’ recall of sexual function and activity reveals mood as a critical biasing factorThe NIH Common Fund Patient-Reported OutcomeMeasurement Information System® (PROMIS®) Exit Disclaimer program aims to use patient-reported data to change the way clinical information is collected, utilized, and reported. For patients to be able to accurately report their symptoms and health-related quality of life to physicians and other care givers, measures must ask questions that are comprehensible and convey meaning to the patient while not burdening them with too many questions.

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Program Highlights

PROMIS Measures Enhance Clinical Care in Pediatric Oncology

PROMIS Measures Enhance Clinical Care in Pediatric Oncology The Patient-Reported Outcomes Measurement Information System (PROMIS) is a program within the NIH Common Fund designed to change the way clinical information is collected, used, and reported. An important group to gather patient reported outcomes is the pediatric population. In a recent study, an NIH-funded research team spanning five clinical sites examined the usability of the PROMIS pediatric measures for oncology patients 8-17 years of age.

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PROMIS II Network Structure 2009-2013
Diagram of the PROMIS network structure

 

New Related Funding-Opportunity!
Improving Methods for Conducting Patient-Centered Outcomes Research – Spring 2014 Cycle. Read more here  Exit Disclaimer
 

 

New Informational Video on PROMIS!!Explore the Patient Reported Outcome Measurement Information System (PROMIS)

Learn more about dynamic tools to measure health outcomes from the patient perspective. View the feature here Exit Disclaimer

 

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