The Common Fund’s Patient-Reported Outcomes Measurement Information System (PROMIS) program is creating new paradigms for how clinical research information is collected, used, and reported. PROMIS addresses a need in the clinical research community for a rigorously tested patient reported outcome (PRO) measurement tool that utilizes recent advances in information technology, psychometrics, and qualitative, cognitive, and health survey research to measure PROs such as pain, fatigue, physical functioning, emotional distress, and social role participation that have a major impact on quality-of-life across a variety of chronic diseases.
PROMIS Measures Enhance Clinical Care in Pediatric Oncology
The Patient-Reported Outcomes Measurement Information System (PROMIS) is a program within the NIH Common Fund designed to change the way clinical information is collected, used, and reported. An important group to gather patient reported outcomes is the pediatric population. In a recent study, an NIH-funded research team spanning five clinical sites examined the usability of the PROMIS pediatric measures for oncology patients 8-17 years of age.
PROMIS Seen as a National Model for Patient Reported Health Measures
According to a recent article from The Commonwealth Fund’s Quality Matters publication, The NIH Common Fund’s Patient-Reported Outcomes Measurement Information System (PROMIS) program has been setting a standard for the development and validation of patient-reported outcomes measures (PROMs) for patients with an array of diseases and conditions.