July 29, 2013 - July 30, 2013
Workshop on Enhancing Training for Biomedical Big Data
Co-chairs: Karen Bandeen-Roche, Ph.D and Zak Kohane, M.D., Ph.D.
This workshop will provide recommendations that will guide NIH staff in the development of long- and shot-term training initiatives, which aim to prepare and empower the biomedical research community to take full advantage of Big Data. The workshop will (a) identify the knowledge and skills needed by individuals and by collaborating teams to work productively with biomedical Big Data, and (b) discuss resources and programs needed to help both trainees and practicing scientists acquire the identified knowledge and skills.
Agenda: Workshop on Enhancing Training for Biomedical Big Data Agenda (PDF 149KB)
This workshop seeks to identify the least duplicative and burdensome, and most sustainable and scalable method to create and maintain an NIH Data Catalog. An NIH Data Catalog would make biomedical data findable and citable, as PubMed does for scientific publications, and would link data to relevant grants, publications, software, or other relevant resources. The Data Catalog would be integrated with other BD2K initiatives as part of the broad NIH response to the challenges and opportunities of Big Data and seek to create an ongoing dialog with stakeholders and users from the biomedical community.
This workshop will identify actionable steps that NIH can take (alone and with others) to enable research use of clinical data, e.g., in pragmatic clinical trials, observational studies, and genome-phenome relationships using electronic health records and other clinical data. In particular, we will consider needs for: 1) research and development of new technologies and methods; 2) common infrastructure to enable the future research scenarios; and 3) policy changes necessary to facilitate progress.
This webinar will provide information about the FOA to prospective applicants. NIH staff will provide an overview of the FOA and answer questions. The webinar is open to all prospective applicants. Participation in the teleconference is not a prerequisite for applying, and is not required for a successful application. Information about how to participate in the webinar will be posted on this website soon. Potential applicants are encouraged to submit their questions or comments to BD2KCentersRFA@mail.nih.gov prior to the meeting. Afterwards, the webinar slides and a summary of the questions and answers will be posted on the site. NIH will also post a list of Frequently Asked Questions (FAQs) and answers; this information may be updated without additional notice.
The overall goal of this workshop is to learn what has worked and what has not worked in community-based standards efforts. Participants will have experience in leading specific community based standards initiatives. Prior to the workshop, participants will be asked to address in writing answers to specific questions regarding formulating, conducting, and maintaining such efforts. This information will be used to facilitate focused and actionable discussion at the workshop. Issuance of a Request for Information soliciting comment from the broader community on some of the key issues addressed in the workshop is currently envisioned.